Privacy Policy.

The Society collects information for legitimate purposes including membership review, educational collaboration, clinical referrals, and the advancement of research.

1a. Membership Applications

Applicants may provide:

• Full name, professional title, and credentials
• Contact information (email, phone, mailing address)
• Educational background and training
• Professional affiliations and certifications
• Research, publications, or case experience

1b. Patient Referral and Inquiry Forms

Patients, caregivers, or representatives may voluntarily submit:

• Name and contact information
• General description of health condition
• Location (city, state, or country) for referral purposes
• Information regarding prior treatment or surgeries

These submissions are optional and should not contain highly sensitive medical details such as full medical records, imaging, or Social Security numbers. The Society does not provide medical advice, diagnosis, or treatment, and does not establish a physician-patient relationship.

1c. Donations and Payments

Third-party payment processors may collect:

• Name and billing address
• Payment card or account details
• Transaction amount and timestamp

The Society does not store complete credit card or banking information on its servers.

1d. Communications

When you contact us by email or through forms on the Site, we may collect your name, email address, and the content of your message in order to respond to inquiries or provide updates.

The Society uses collected information to:

• Review and process membership applications
• Facilitate patient referral inquiries
• Send acceptance, denial, or follow-up emails regarding applications
• Issue membership certificates and confirmations
• Maintain secure internal membership records
• Provide access to private member-only content or discussions
• Process and acknowledge donations
• Respond to general inquiries
• Improve the functionality and security of the Site

We will never sell or rent your personal or health information.

The Society processes information based on:

• Consent — voluntary information provided via forms or email
• Contractual Necessity — to process membership or donation transactions
• Legitimate Interest — to administer educational and research activities
• Legal Compliance — to meet obligations under HIPAA or applicable state laws

Submissions involving Protected Health Information (PHI) must comply with HIPAA. The Society requires all members and contributors to:

• Obtain appropriate patient consent using the provided consent form before sharing identifiable case data
• De-identify patient information whenever possible
• Use protected health information only for legitimate educational, research, or referral purposes

The Society does not maintain medical records or act as a covered healthcare entity under HIPAA, but enforces compliance among members to maintain ethical and legal standards.

The Society may share limited data only in the following cases:

• With authorized administrators for application or referral processing
• With participating medical professionals for referral coordination (with consent)
• With third-party payment processors (for transactions only)
• When required by law, subpoena, or regulatory request

We do not sell, lease, or otherwise disclose personal data for marketing or unrelated purposes.

• Membership application data is retained for internal records.
• Referral form submissions are stored for the limited duration necessary to coordinate responses.
• Donation and transaction records are retained as required for accounting and legal compliance.
• Individuals may request deletion by contacting oplpreserve@gmail.com; certain information may be retained for legal or administrative reasons.

The Society employs administrative, technical, and organizational safeguards including:

• Secure HTTPS website encryption
• Restricted access to sensitive records
• Secure payment gateways for transactions
• Data minimization and anonymization practices for case materials

No system is completely immune to breaches; transmission of information over the internet occurs at the user’s own risk.

The website may use cookies or analytics tools to monitor performance and user engagement. Cookies do not collect personally identifiable health data and can be disabled in browser settings.

Submitting an application, donation, or inquiry implies consent to receive transactional or informational emails. Users may unsubscribe from non-essential communications by following instructions included in those messages.

The website is intended for adults eighteen (18) years of age and older. The Society does not knowingly collect information from minors and will promptly delete any data received from children under 18.

Individuals may request to review, correct, or delete personal information by contacting oplpreserve@gmail.com. The Society will respond within thirty (30) days, consistent with applicable law.

The website operates from the United States and is governed by U.S. law. Users accessing the site from outside the U.S. consent to the transfer and processing of their data within the U.S.

The site may contain links to external websites for educational or referral purposes. The Society is not responsible for the privacy practices or content of third-party websites.

The Society may update this policy periodically to reflect changes in practices or legal requirements. Revised versions will be posted with a new revision date. Continued use of the site constitutes acceptance of the updated policy.

For questions about this policy, data handling, or to request corrections or deletions, please contact: oplpreserve@gmail.com.